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STROKE TALK

IS
ASKING FOR CARERS AND PEOPLE WHO HAVE BEEN
AFFECTED BY A STROKE TO MAKE THEIR VIEWS KNOWN, ABOUT SOCIAL SERVICES & NHS TREATMENT THEY
RECEIVED IN HOSPITAL AND AT HOME.

DO OTHER COUNTRIES PROVIDE BETTER TREATMENT FOR STROKE VICTIMS THAN THE UK?

ARE YOU A STROKE VICTIM ?
STATE YOUR GRIPES & ADVICE
TELL YOUR STORY


Stroke victims failed by the system


THE STAGE & TV Obituary: Howard Burnette



Lisa's Poem entered 10th January 2005, hoping this poem may open some peoples eyes.


STROKE VICTIMS FAILED BY THE SYSTEM CLICK HERE

16th April 2012

In the late 1950s my Granddad had a stroke. He had retired to Blackpool and he had been planing a sticking cupboard door when the stroke occurred. Grandma somehow got him to bed and the doctor was called. At the time I would have been aged about ten. The doctor left a bottle of white medicine with instructions to give three spoonfuls per day. Granddad did not want this medicine and barricaded the room door (he had worked as a manufacturing chemist before he retired) Neighbours were called to force the door and the medicine was given. On the third day after the stroke he was dead. With hindsight there were two or three very strange occurrences in this case. Firstly my Grandma told me that she asked the doctor if there would be enough medicine. The reply was "Oh yes you'll have enough". After Granddad had died the doctor called again presumably to write out the death certificate but was seems odd to me is that he took the bottle of "medicine" away with him. Granddad was cremated so any evidence of what was in that bottle was lost. Looking back it now seems that Granddad knew they were going to poison him which is why he barricaded the door. If what I think went on, went on this could make Harold Shipman look like an amateur. Granddad was aged sixty eight but for some reason people in those days were lucky to reach the biblical three score and ten. Now I'm not a doctor but as far as I know, a stroke should not be fatal. Grandma did not have a technical education as before she married Granddad she worked as a Clippie on the trams. I think she was duped into poisoning Granddad.

David. UK.
Email Address: cleopatraman@live.co.uk



6TH MAY 2011

MY STROKE OCT 2010.NOW I HAVE BEEN ADVISED TO HAVE MASSAGE ON CERTAIN AREAS TO ASSIST MY MOVEMENT.BUT AS I A PENSIONER FIND IT DIFFICULT TO PAY FOR IT.IS THERE A SCHEME TO HAVE MASSAGE EITHER FREE,OR CHEAPER.I AM IN GEELONG VICTORIA AUSTRALIA.

Tom Sim, Australia.
Email Address: joblow01@dodo.com.au



16TH MARCH 2011

MY GRIPE
Any advice on how to get a social worker. I had my stroke August 07, was treated like shit then and still today. No wonder I'm suicidal and stressed all the time. Maybe if I would have been treated properly and respectfully then I might not feel this bad.

Kerry, United Kingdom.
Email Address: Kerrymooney@live.co.uk



2ND MARCH 2011

MY STORY
In 2004 had a hemorrhagic stroke. I was left with my rt. leg being paralyzed and a very slight speech deficit. A manual and a power wheelchair have been my main source of getting around. I love the outdoors so winter is difficult and depression sets in. Love the computer and communicating with friends. If you'd like to read my 1st. yr. experience after my stoke and how my life was changed I wrote a detailed account on the hospital website where I was a patient for a month following the stroke. Email me if you'd like to hear my story. Terry

Terry Beans, USA.
Email Address: sacramento@comcast.net



3RD DECEMBER 2010

MY STORY
My father had a storke on tues, and came home today. He claims he was playing a joke by speaking with an irish accent (we are not irish) and was speaking very loudly. Beside the fake accent, he "just wasn't dad". Is it possible that it was not a joke, and he just thinks he was playing a joke? We do not believe it was a joke, as he took the stroke very seriously. It is the first stroke he's had, and was on the right side of his brain. -Thank you.

Krystle, USA.
Email Address: kcass84@gmail.com



24TH NOVEMBER 2010



MY STORY
I had 2 minor strokes and a massive, in 2006 aged only 19 i'm 23 now and i'm looking 2 talk to stroke victims in the same situation as me. as a result of the strokes i'm left with a weakness down my left side, which has left me with no use in my left hand and a splint 4 my leg. so if anytime you fancy a wee chat then add me juliedempsterx@hotmail.com.i feel it would b good to talk 2 sum1 who has been through and feels the the same as me :) hope 2 hear from yous soon :)

Julie, UK.
Email Address: juliedempsterx@hotmail.com



4th August 2010



MY STORY
march 31 2009...i had at 43 year old a massive stroke just after i had got from my car..my right side of my face from my temple down to underneath the right side of my jaw went numb and felt like someone had got a boiling hot frypan and placed it on my face..the burn was the worst of ever felt in my life..my speech went like i was a hopeless drunk..i was numb the whole right side of my body..
been rushed to hospital i was put on heart and whatever else they done.. in wakeing up the next morning my right side was good and my left side now became useless..in the next 28 days i was in hospital i had to learn to talk,walk and write again,you couldn't imagine my frustration at being left handed..
To anyone who has had or who knows a stroke victim please learn one thing..you get a big chip on your shoulder because your brain is not thinking anymore like it used to..im 16 months after it now and thru strenght and will am know atleast 90% ok...please feel free to contact me if you need guidence...

Ray, Australia
Email Address: rayconyngham@bigpond.com



8th July 2010



MY GRIPE,
18 weeks ago my father in law (66) had a sever stroke. He lives in Kirklees (Yorkshire) and is in Wakefield hospital. The stroke attacked the left side of his body resulting in extremely limited use of his left leg (He can't walk but can stand holdig onto something although he is unable to get to a standing position unaided.) He has no use at all of his left arm. His also has visual impairment and massively reduced attention span. He has stopped making progress and has been told that he will be discharged in three weeks. What I need to know is what supports is he entitled to. He owns a semi deteached 3 bedroomed house but is not financially well off. Both he and his wife are depended upon the state pension. At this stage it appears the states responsibilty ends at the hospital door!

Paul Fagan, England UK
Email Address: pfagan2000@yahoo.co.uk



11th December 2009



Hi,
I am writing to find out if there is anyone out there that has suffered a Thalamtic stroke and who has or is also suffering with central nerve pain. I am writing on behalf of my mum, she has just turned 60 years old and suffered the stroke 2 years ago, fortunately, she has not been left with paraylisis to the side of her body but suffers stiffness and chronic unbearable pain, the last 2 weeks she has suffered pain in her other arm and was taken to hospital where captulitis was also diagnosed. She needs to find someone to talk to who is experincing the same so she can talk to someone sympathetic as she also had a traumatic experience with the hospital at the time she suffered her stroke. please please email if you would like to get in touch with my mum, its hard as a family member to fully understand what she and others are experiencing although we do try our best and support her, thank you for reading and I wish you all the best.

Donna, England UK
Email Address: donnamlundrigan@hotmail.co.uk




24th July 2007

"Hi,

My nanna had a stroke just over a year ago and it has fallen on me and my sister and my mam to care for her. now i love my nan to death but she is now completely dependent and it is hard work. there are no real help available to carers of victims of a stroke and think that much is needed to be done.

Mary, UK mary.smart3@ntlworld.com


"Under staffed, over worked, are four words that spring to mind. There's always enough money for Administration Managers, according to reports, there's more managers than beds, in the National Health Service, P R consultants and expensive working dinners, but not where it matters, at the sharp end. Why don't these people realise, the NHS is not there to provide them with a opportunity to pamper to their inflated egos, but to get the patients better. It maybe seems a bit naive, to expect this. But commonsense should enter in this equation, how many patients, have been wrongly diagnosed, because a over worked doctor was expected to work long hours, because it was financially beneficial in the short term, why did the doctor not send me immediately for a scan, was it he had to weigh up whether to waste money on the scan, and have it come back normal. Or they don't have that facility open at weekends, because of the overtime. Surely the powers that be, know that you can get ill at weekend. I apologise if I'm getting carried away, but it'll come clear later."CLICK HERE TO READ NOEL'S STORY

"After overcoming initial dificulties of getting in and out of the water, I have started visiting a local private pool, because I feel it will help in my recovery I was a strong swimmer and, before my stroke, swam weekly.Now, however, once in the water, I have no confidence and cannot take my feet off the bottom. Could you please advise of any outlets, especially those with a website, where I could obtain a suitable buoyancy aid"

Laurie Haworth.
Email Address: HAWORTHL8@aol.com



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"Just wanted to let readers know that as a result of my story being on here I've had some responding emails and have just started my own little group for chat and support. etc. My Mum, Dot who had the stroke will also be there too. So anyone wanting to yell and shout, get a bit of support or just to talk to a similar experiencee...we are in people & chat on MSN under health/support groups.
strokeconnection@groups.msn.com

Please feel free to visit us - anytime - we are usually up late."


Helen.

Contact paul@stroketalk.co.uk

www.stroketalk.co.uk